It is Neurofibromatosis..there are some sites out there that show people who have it and tell about it. She has to go to Valley Children's Hospital soon for a lymph node biopsy. It's a pretty scary disease, but it can also be mild...but either way, it's gonna be part of her life forever now.
We soooo much did not need this to happen.
1 comment:
Does she have 1 or 2? How is it affecting her?
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